https://ogma.newcastle.edu.au/vital/access/ /manager/Index ${session.getAttribute("locale")} 5 Psychological morbidity among Australian rural and urban support persons of haematological cancer survivors: results of a national study https://ogma.newcastle.edu.au/vital/access/ /manager/Repository/uon:31056 .05. Odds of reporting at least 1 indicator of psychological morbidity increased by 10% to 17% for each additional high or very high unmet need and by 2% for those who had relocated from their usual place of residence for the survivor to receive treatment and was decreased by 5% to 54% for those support persons who reported that they had no chronic health conditions. Conclusions: Psychological outcomes for rural and urban support persons are similar. Those who have poor health, have had to relocate, and who have multiple unmet needs are particularly vulnerable to poor psychological outcomes. These factors should be assessed to enable early intervention for those at risk of poor outcomes.]]> Wed 23 Feb 2022 16:02:01 AEDT ]]> Exploring advance care planning awareness, experiences, and preferences of people with cancer and support people: an Australian online cross-sectional study https://ogma.newcastle.edu.au/vital/access/ /manager/Repository/uon:47088 Wed 14 Dec 2022 09:30:23 AEDT ]]> Quantifying the unmet needs of caregivers of people with dementia: a critical review of the quality of measures https://ogma.newcastle.edu.au/vital/access/ /manager/Repository/uon:31383 Wed 11 Apr 2018 13:29:08 AEST ]]> Financial and social impact of supporting a haematological cancer survivor https://ogma.newcastle.edu.au/vital/access/ /manager/Repository/uon:22091 Wed 11 Apr 2018 11:19:30 AEST ]]> Computer and telephone delivered interventions to support caregivers of people with dementia: a systematic review of research output and quality https://ogma.newcastle.edu.au/vital/access/ /manager/Repository/uon:30022 Wed 11 Apr 2018 09:14:00 AEST ]]> Virtual Dementia-Friendly Communities (Verily Connect) Stepped-Wedge Cluster-Randomised Controlled Trial: Improving Dementia Caregiver Wellbeing in Rural Australia https://ogma.newcastle.edu.au/vital/access/ /manager/Repository/uon:54633 Wed 06 Mar 2024 11:00:13 AEDT ]]> Preventive care for physical activity and fruit and vegetable consumption: a survey of family carer expectations of health service delivery for people with a mental health condition https://ogma.newcastle.edu.au/vital/access/ /manager/Repository/uon:37265 Tue 15 Sep 2020 13:05:19 AEST ]]> What are the sources of distress in a range of cancer caregivers?: a qualitative study https://ogma.newcastle.edu.au/vital/access/ /manager/Repository/uon:46180 n = 14) were aged from 25 to 80 years, including two bereaved caregivers. The relationships of the caregivers to the patients were as follows: partner (n = 8), parent (n = 1), child (n = 3), sibling (n = 1), and friend (n = 1). Six major themes emerged in relation to sources of distress: (1) a lack of sufficient and timely information; (2) uncertainty; (3) the role and duties of caregiving; (4) lack of family-centred services; (5) practical challenges; and (6) impact of distress. Conclusion: Caregivers face a number of specific challenges beyond those experienced by patients. It is essential to ensure that caregivers are actively well-informed and well-supported alongside the person who is diagnosed with cancer.]]> Tue 15 Nov 2022 08:33:39 AEDT ]]> Caregiver decision-making for school placement of children who are deaf or hard of hearing and children with other disabilities: a global perspective https://ogma.newcastle.edu.au/vital/access/ /manager/Repository/uon:41623 Tue 09 Aug 2022 10:12:16 AEST ]]> Caregiver delivered massage therapy options in inpatient palliative care: A mixed methods exploratory study https://ogma.newcastle.edu.au/vital/access/ /manager/Repository/uon:53497 Thu 30 Nov 2023 15:51:01 AEDT ]]> A co-production approach guided by the behaviour change wheel to develop an intervention for reducing sedentary behaviour after stroke https://ogma.newcastle.edu.au/vital/access/ /manager/Repository/uon:37242 Thu 28 Oct 2021 12:35:54 AEDT ]]> Parents’ Decision Making During Their Child’s Asthma Attack: Qualitative Systematic Review https://ogma.newcastle.edu.au/vital/access/ /manager/Repository/uon:44829 Thu 27 Oct 2022 10:15:38 AEDT ]]> Preventive care for physical activity and fruit and vegetable consumption: a cross-sectional survey of family carer expectations of health service delivery for people with a mental health condition https://ogma.newcastle.edu.au/vital/access/ /manager/Repository/uon:38639 Thu 14 Mar 2024 12:29:12 AEDT ]]> Protocol of a multi-centre randomised controlled trial of a web-based information intervention with nurse-delivered telephone support for haematological cancer patients and their support persons https://ogma.newcastle.edu.au/vital/access/ /manager/Repository/uon:23946 Thu 13 Aug 2020 08:44:39 AEST ]]> Development of a cancer needs questionnaire for parents and carers of adolescents and young adults with cancer https://ogma.newcastle.edu.au/vital/access/ /manager/Repository/uon:14002 Sat 24 Mar 2018 10:38:26 AEDT ]]> Measuring the unmet supportive care needs of cancer support persons: the development of the support person's unmet needs survey - short form https://ogma.newcastle.edu.au/vital/access/ /manager/Repository/uon:17875 Sat 24 Mar 2018 07:56:43 AEDT ]]> Development of the palliative care needs assessment tool (PC-NAT) for use by multi-disciplinary health professionals https://ogma.newcastle.edu.au/vital/access/ /manager/Repository/uon:5011 Sat 24 Mar 2018 07:44:12 AEDT ]]> Supporting change in chronic disease risk behaviours for people with a mental illness: a qualitative study of the experiences of family carers https://ogma.newcastle.edu.au/vital/access/ /manager/Repository/uon:32792 Mon 23 Sep 2019 13:00:21 AEST ]]> Narratives of illness and recovery: (re)constructing continuity in life after stroke https://ogma.newcastle.edu.au/vital/access/ /manager/Repository/uon:54172 Mon 11 Mar 2024 12:10:28 AEDT ]]> Stroke survivor, caregiver and therapist experiences of home-based stroke rehabilitation: a thematic synthesis of qualitative studies https://ogma.newcastle.edu.au/vital/access/ /manager/Repository/uon:51591 Fri 22 Sep 2023 13:48:17 AEST ]]> Chinese version of the Cancer Support Person's Unmet Needs Survey-Sort Form: A psychometric study https://ogma.newcastle.edu.au/vital/access/ /manager/Repository/uon:49487 Fri 19 May 2023 09:34:55 AEST ]]> Psychosocial well-being of brain cancer patients and support persons: A mapping review of study types over time https://ogma.newcastle.edu.au/vital/access/ /manager/Repository/uon:49364 Fri 12 May 2023 12:42:06 AEST ]]> Validity, reliability and clinical feasibility of a needs assessment tool for people with progressive cancer https://ogma.newcastle.edu.au/vital/access/ /manager/Repository/uon:9513 Fri 10 Mar 2023 17:45:35 AEDT ]]> Quality versus quantity in end-of-life choices of cancer patients and support persons: a discrete choice experiment https://ogma.newcastle.edu.au/vital/access/ /manager/Repository/uon:32216 Fri 10 Mar 2023 17:18:40 AEDT ]]>